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	<title>Comments on: Tommy Hackenson 1970-2008</title>
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	<link>http://christaassad.com/2008/03/27/tommy-hackenson-1970-2008/</link>
	<description>ceramic artist</description>
	<pubDate>Sat, 22 Nov 2008 02:31:45 +0000</pubDate>
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		<title>By: Judi Tavill</title>
		<link>http://christaassad.com/2008/03/27/tommy-hackenson-1970-2008/#comment-330</link>
		<dc:creator>Judi Tavill</dc:creator>
		<pubDate>Mon, 31 Mar 2008 04:45:15 +0000</pubDate>
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		<description>Oh I did leave out... she is on a feeding tube and a trach ...she communicates through a computer using her eyes...I just felt that leaving that out was big.</description>
		<content:encoded><![CDATA[<p>Oh I did leave out&#8230; she is on a feeding tube and a trach &#8230;she communicates through a computer using her eyes&#8230;I just felt that leaving that out was big.</p>
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		<title>By: Judi Tavill</title>
		<link>http://christaassad.com/2008/03/27/tommy-hackenson-1970-2008/#comment-329</link>
		<dc:creator>Judi Tavill</dc:creator>
		<pubDate>Mon, 31 Mar 2008 04:43:37 +0000</pubDate>
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		<description>Christa...
I follow your blog because I admire you as a wonderful potter/artist.
However... I have a very close friend.(47)..mother of 4 boys 5-13...used to work for Goldman-Sachs/Wall Street.. Power house mom,really...and she has a progressive form of ALS... VERY similar to MS...her mind and sensations are completely in tact, her muscles and breathing...GONE.
She was diagnosed a year ago December... her father died of it 8 months after diagnosis 30 years ago...in her case it's genetic...but hat was found out only after she got scik...her boys are at a 50% risk of getting the gene for this aggressive form and 95% chance if they have the gene...they will get the illness. Nice. Right?
Anyway...I go spend some time with her every day to every few days.. her boys are very close with my boys...Its devastating and yet I know she appreciates us...Getting to the POINT...as I am SURE your friend Tommy appreciated you. I guess it just brings the idea that we must realize how fleeting our time here is and continue to enrich and be enriched and you already doing that. Thank you for that.</description>
		<content:encoded><![CDATA[<p>Christa&#8230;<br />
I follow your blog because I admire you as a wonderful potter/artist.<br />
However&#8230; I have a very close friend.(47)..mother of 4 boys 5-13&#8230;used to work for Goldman-Sachs/Wall Street.. Power house mom,really&#8230;and she has a progressive form of ALS&#8230; VERY similar to MS&#8230;her mind and sensations are completely in tact, her muscles and breathing&#8230;GONE.<br />
She was diagnosed a year ago December&#8230; her father died of it 8 months after diagnosis 30 years ago&#8230;in her case it&#8217;s genetic&#8230;but hat was found out only after she got scik&#8230;her boys are at a 50% risk of getting the gene for this aggressive form and 95% chance if they have the gene&#8230;they will get the illness. Nice. Right?<br />
Anyway&#8230;I go spend some time with her every day to every few days.. her boys are very close with my boys&#8230;Its devastating and yet I know she appreciates us&#8230;Getting to the POINT&#8230;as I am SURE your friend Tommy appreciated you. I guess it just brings the idea that we must realize how fleeting our time here is and continue to enrich and be enriched and you already doing that. Thank you for that.</p>
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